Kim and I have decided on a few options for those wishing to support us on the journey we are on.
- First and foremost, we desire your prayers for us! We know God is with us and He will be our guide.
- Hunter's Hope is the leading Krabbe (and broader Leukodystrophy in general) organization spearheading the research for a cure. We will be joining the Hunter's Hope Family at the end of July for a Family and Medical Symposium. We have asked for details about how you can make a donation to Hunter's Hope on behalf of Charles. When we have that info, we will update it here.
- The Ryan House is a complete Hospice and Respite Care Facility here in Phoenix providing amazing support and services to family's with children with extreme medical needs. They offer a range of services from short, hour long times of full medical staff care to longer extended stay options for families to have the opportunity to spend time as a couple or as a family to rejuvenate, enabling parents the ability to dedicate the time needed for the 24 hour a day care some of these kiddos need.
- A family friend, who also lost their boy to a Leukodystrophy condition earlier this year, set up a YouCaring account. YouCaring is a compassionate crowd funding service allowing support options for families facing various difficulties.
Thank you to everyone who has reached out to us so far. Please continue to pray for us as we continue this journey.
Blessings
The Moodys
